The roller coaster of feelings that we've experienced after Anneliese returned home to our Heavenly Father have been overwhelming at times. But the hardest for me has been the guilt I have felt. Guilt that I can't remember much. Guilt that I have great and happy days and then guilt that I have bad days. Guilt that I am not coping right. Guilt that I am neglecting Jillsie and Jake while I grieve and figure out HOW to grieve. It's exhausting and at times I feel so emotionally overloaded that I fall apart and wonder how I can keep going....AGAIN! I KNOW satan is trying to knock us down and out right now. . . because he has been hitting us constantly and in so many different areas of our lives. Our experiences with Anneliese has helped us be more anchored in the gospel of Jesus Christ and closer to our very loving Heavenly Father than EVER. But, fighting off the guilt emotions as well as the others has left Jake and I feeling like we are huddled in a corner just waiting for the barrage of attacks to end.
I felt so much peace at the hospital after Anneliese came, that I think I expected to just be at peace throughout the rest of this experience. I think I thought that I was over the hard part. She came, we had SO many prayers answered and had so much peace and joy after that I felt I was going to be ok. That my heart wouldn't ache as much. But, the day after the funeral. . .reality set in a bit. It was just the three of us again. Anneliese was real right? And as the days progressed reality hit hard. . .guilt, heartache, frustration, denial, a lot more heartache, more guilt and an insane ache of wanting a baby in my arms and trying to figure out how to get pregnant fast. I started to pray so fervently that the aches would lift so I could function 'normally' again. But, as the days passed. . .I just felt more empty. Jake was back at work, Jillsie had preschool and play dates. . . .and me. . . .I had more time to think than I wanted. Thinking means crying lately and I just wanted the pain to be over! I still just want the pain to be over. But, since it won't be, we are learning how to cope again. We are learning to take it moment by moment again. Learning our new 'normal' and trying hard to stay close to the Savior as we fight our way out of the corner we are huddled in. We have felt of our Heavenly Fathers love in SO many ways and through SO many people. We feel so very grateful for the outpouring of love shown from all of our family, friends and even complete strangers! We are truly so very blessed! And I am grateful to say that I would still do this ALL over again for our sweet Anneliese to progress the way she needed in our Heavenly Fathers plan! We are so very grateful for the knowledge we have of the Plan of Happiness and that we can be together forever as a family!
Coping with Infertility, Anencephaly, a preemie and Auditory Neuropathy Spectrum Disorder
Saturday, February 22, 2014
Outlet...
I have had a hard time writing lately. Not that I don't want to, but I feel self conscious and nervous since publicly sharing our blog. Will I say things right? Will our loved ones worry more? Is that word spelled correctly? Is that grammatically correct? It's like all of these ridiculous worries deterred me from writing. I started thinking, 'it's ok, no one needs to hear from us anyway.' But, I have now felt on a daily basis that I NEED to write again. Not necessarily for anyone else...but for ME. I need my outlet, I need to share, and learn, and feel all that I need to at this time in my life...so I can remember. I feel like I have been in a foggy existence since Anneliese's birth. I hope that using my 'outlet' helps me remember and feel more clearly again.
Tuesday, February 11, 2014
Ups and downs
Two weeks, four days. Time has blurred by. . .it feels like the last year is a blur. Was I really just pregnant? The crazy range of emotions of getting pregnant, finding out she won't be here with us long and then saying goodbye has all come and gone much too fast. It's been so much harder than I had anticipated.
When we were trying to get pregnant, I'd see pregnant women and wish I could just BE pregnant. Then we finally got pregnant with Anneliese, and I'd see other pregnant women, I'd envy them having a happy and excited pregnancy. And now, when I see pregnant women, I wish that I could just be pregnant with Anneliese still, feeling her kick and move and knowing she is just with me. . .and at the same time wishing I could just be pregnant with our next little one now.
It's made me realize how dissatisfied I've been and how I need to show more gratitude for where I am now and what God has blessed me with RIGHT NOW. I am so very blessed! We are surrounded by supportive and loving family, friends, and neighbors. We have had countless cards, emails, texts, flowers, gifts, meals, visits and love poured out in our home then we could have ever have imagined. We have had an extreme amount of peace in our hearts about when Anneliese came and how quickly she left. And with that peace we've felt, and the amount of joy and happiness we feel for Anneliese, it's made it easier for us during the hard and sad moments. There are hard and sad moments. Moments where I once again ask, 'Why?' all over again and wish it would all go away. Wish the pain in my chest would subside, wish the tears that come so easily would dry up and wish that I could just feel like ME again. And so during this crazy roller coaster of emotions, I feel very blessed and grateful for what I have now. Grateful for happy moments, for shows that make me laugh, for friends who help distract me. Grateful for Pinterest! For crafts and projects and paint samples to focus on something completely different for awhile and dream of changing our whole house!! :)
I'm realizing more and more the joy and hope of 'opposition in all things'. It truly is such a blessing! I first felt it so strongly after we had Anneliese. The heartache of going through this pregnancy and wishing so desperately to have it all be a different outcome and then having Anneliese and the insane amount of love and peace and joy we felt for our little girl...I KNEW I'd go through all of the heartache and pain again! It's made me hopeful and excited for the future...the heartache and pain I'm feeling now....there is a matching amount of joy and happiness for me. . .sometime in the future. I don't know when, but my Heavenly Father does, but through this experience I have learned that He does and will continue to take care of us!! Things will all work out. . .and they will be AMAZING!
When we were trying to get pregnant, I'd see pregnant women and wish I could just BE pregnant. Then we finally got pregnant with Anneliese, and I'd see other pregnant women, I'd envy them having a happy and excited pregnancy. And now, when I see pregnant women, I wish that I could just be pregnant with Anneliese still, feeling her kick and move and knowing she is just with me. . .and at the same time wishing I could just be pregnant with our next little one now.
It's made me realize how dissatisfied I've been and how I need to show more gratitude for where I am now and what God has blessed me with RIGHT NOW. I am so very blessed! We are surrounded by supportive and loving family, friends, and neighbors. We have had countless cards, emails, texts, flowers, gifts, meals, visits and love poured out in our home then we could have ever have imagined. We have had an extreme amount of peace in our hearts about when Anneliese came and how quickly she left. And with that peace we've felt, and the amount of joy and happiness we feel for Anneliese, it's made it easier for us during the hard and sad moments. There are hard and sad moments. Moments where I once again ask, 'Why?' all over again and wish it would all go away. Wish the pain in my chest would subside, wish the tears that come so easily would dry up and wish that I could just feel like ME again. And so during this crazy roller coaster of emotions, I feel very blessed and grateful for what I have now. Grateful for happy moments, for shows that make me laugh, for friends who help distract me. Grateful for Pinterest! For crafts and projects and paint samples to focus on something completely different for awhile and dream of changing our whole house!! :)
I'm realizing more and more the joy and hope of 'opposition in all things'. It truly is such a blessing! I first felt it so strongly after we had Anneliese. The heartache of going through this pregnancy and wishing so desperately to have it all be a different outcome and then having Anneliese and the insane amount of love and peace and joy we felt for our little girl...I KNEW I'd go through all of the heartache and pain again! It's made me hopeful and excited for the future...the heartache and pain I'm feeling now....there is a matching amount of joy and happiness for me. . .sometime in the future. I don't know when, but my Heavenly Father does, but through this experience I have learned that He does and will continue to take care of us!! Things will all work out. . .and they will be AMAZING!
Friday, February 7, 2014
Celebrating Her Miraculous Journey
This is Jake. I guess it's my turn to share some thoughts. On Monday January 27, 2014 we celebrated Anneliese. We were blessed with such love and support! The only way we have been able to describe what we felt during the funeral preparations and her actual celebration, was "Overwhelmingly grateful." Grateful to meet her. Grateful to feel so close to heaven. Grateful to see such miracles. Grateful for such amazing family and friends. And the list goes on. We received countless emails, text messages, phone calls, visits by amazing people offering to babysit Jillian so Heidi and I could be together, friends and neighbors dropping off meals, treats, gifts and hugs, and family spending time cleaning our house and cooking us meals. We had family fly in and many others who wanted to be with us on Anneliese's special day and still helped celebrate with us in their own special ways.
We felt so blessed that the labor and delivery went smoothly, allowing us to spend time as a family without nurses or doctors interrupting us. Heidi was admitted to the hospital about 5:30am and discharged at 7pm that same day. We spent the immediate days following Anneliese's arrival and departure at home as a family. On our way home from the hospital I wanted to pick up some lumber to make Anneliese a display shadow box for the celebration. I grew up in a home with a display case on our dining room wall filled with a picture, booties and a few other remembrances of my baby sister Adrienne who passed away from SIDS at 6 weeks old. I was only 9 years old at the time, and although most of my memories of her have faded over the last 20+ years, I often found myself staring at it during times of big decisions, trials and confusion in my life. It always seemed to bring me great peace, strength, direction and comfort in hard times.
So, while my sister in law was upstairs chatting with Heidi on the Saturday afternoon before the celebration, I was in the basement turning 3 pieces of wood into my best concoction of what Heidi had expressed to me she eventually wanted Anneliese's shadow box to look like. I thought I had done a pretty good job, but when I brought it up the stairs to confirm if it was the the right size for what she wanted to put in it, her eyes immediately filled with tears and holding her hand over her heart, she whispered to me, "It's perfect." My sister-in-law stole herself away to the front room for a minute while Heidi and I held each other and cried tears of both sadness and joy. Sadness that the shadow box would be the one to tangibly hold our angel baby and not us, and joy because it would also be holding those items that touched our sweet Anneliese, and would serve as a constant reminder of her life of perfection and be a mechanism of healing our hearts until we can hold her again.
Heidi did an amazing job filling it with her feet and hand molds the hospital made for us, her baby bracelet, dress, and cap she wore at the hospital for pictures, and a framed picture of Heidi and I holding her. This will soon hang in our Master Bedroom...just as soon as I find the right hardware to hang it properly.
Now that we've had 2 weeks to absorb what's happened, we are realizing just how emotionally up and down our lives are at the moment. It appears that one moment everything is fine. We are going through the motions of our routine and things are moving along. I'm back to work. Jillian is back to school twice a week and Heidi is keeping the house together as she always has. But I'd be lying if I said we are really back to normal. I feel about as unstable as ever. It appears that only a few seconds after, "Everything is fine," we're holding each other in tears, with aching arms to snuggle Anneliese again and see her older sister do the same.
My heart aches for Jillian to have a sibling to play with. Yesterday we celebrated Jillian's 4th birthday, and at the last minute booked a condo to give her our undivided attention for a long weekend, so she would know how loved she still is by her, "Unstable" parents. I've come to grips with the fact that I'm not the perfect father, but I'm trying. All I can do is try harder today than I did yesterday. My girls need me right now more than ever before, and although there often doesn't seem to be much, "Fuel left in the tank," it's the life I can say that I am glad I chose, and it's my responsibility to EXPRESS my love and support constantly. There is no "Day off" as a husband and father, and I consider myself so blessed to have been raised by such an amazing father who could teach me that first-hand as I am 1 of his 13 children. On my baby sister's headstone my parents were wise enough to engrave, "Our lighthouse in the storm." They were so inspired in choosing that. I don't recall a single trial in my life where I didn't reflect on that phrase.
We all have trials we don't want to bear. My favorite scripture is found in The Book of Mormon: "And now, my sons, remember, remember that it is upon the arock of our Redeemer, who is Christ, the Son of God, that ye must build your bfoundation; that when the devil shall send forth his mighty winds, yea, his shafts in the whirlwind, yea, when all his hail and his mighty cstorm shall beat upon you, it shall have no power over you to drag you down to the gulf of misery and endless wo, because of the rock upon which ye are built, which is a sure foundation, a foundation whereon if men build they cannot fall."(Helaman 5:12)
We felt so blessed that the labor and delivery went smoothly, allowing us to spend time as a family without nurses or doctors interrupting us. Heidi was admitted to the hospital about 5:30am and discharged at 7pm that same day. We spent the immediate days following Anneliese's arrival and departure at home as a family. On our way home from the hospital I wanted to pick up some lumber to make Anneliese a display shadow box for the celebration. I grew up in a home with a display case on our dining room wall filled with a picture, booties and a few other remembrances of my baby sister Adrienne who passed away from SIDS at 6 weeks old. I was only 9 years old at the time, and although most of my memories of her have faded over the last 20+ years, I often found myself staring at it during times of big decisions, trials and confusion in my life. It always seemed to bring me great peace, strength, direction and comfort in hard times.
So, while my sister in law was upstairs chatting with Heidi on the Saturday afternoon before the celebration, I was in the basement turning 3 pieces of wood into my best concoction of what Heidi had expressed to me she eventually wanted Anneliese's shadow box to look like. I thought I had done a pretty good job, but when I brought it up the stairs to confirm if it was the the right size for what she wanted to put in it, her eyes immediately filled with tears and holding her hand over her heart, she whispered to me, "It's perfect." My sister-in-law stole herself away to the front room for a minute while Heidi and I held each other and cried tears of both sadness and joy. Sadness that the shadow box would be the one to tangibly hold our angel baby and not us, and joy because it would also be holding those items that touched our sweet Anneliese, and would serve as a constant reminder of her life of perfection and be a mechanism of healing our hearts until we can hold her again.
Heidi did an amazing job filling it with her feet and hand molds the hospital made for us, her baby bracelet, dress, and cap she wore at the hospital for pictures, and a framed picture of Heidi and I holding her. This will soon hang in our Master Bedroom...just as soon as I find the right hardware to hang it properly.
Now that we've had 2 weeks to absorb what's happened, we are realizing just how emotionally up and down our lives are at the moment. It appears that one moment everything is fine. We are going through the motions of our routine and things are moving along. I'm back to work. Jillian is back to school twice a week and Heidi is keeping the house together as she always has. But I'd be lying if I said we are really back to normal. I feel about as unstable as ever. It appears that only a few seconds after, "Everything is fine," we're holding each other in tears, with aching arms to snuggle Anneliese again and see her older sister do the same.
My heart aches for Jillian to have a sibling to play with. Yesterday we celebrated Jillian's 4th birthday, and at the last minute booked a condo to give her our undivided attention for a long weekend, so she would know how loved she still is by her, "Unstable" parents. I've come to grips with the fact that I'm not the perfect father, but I'm trying. All I can do is try harder today than I did yesterday. My girls need me right now more than ever before, and although there often doesn't seem to be much, "Fuel left in the tank," it's the life I can say that I am glad I chose, and it's my responsibility to EXPRESS my love and support constantly. There is no "Day off" as a husband and father, and I consider myself so blessed to have been raised by such an amazing father who could teach me that first-hand as I am 1 of his 13 children. On my baby sister's headstone my parents were wise enough to engrave, "Our lighthouse in the storm." They were so inspired in choosing that. I don't recall a single trial in my life where I didn't reflect on that phrase.
We all have trials we don't want to bear. My favorite scripture is found in The Book of Mormon: "And now, my sons, remember, remember that it is upon the arock of our Redeemer, who is Christ, the Son of God, that ye must build your bfoundation; that when the devil shall send forth his mighty winds, yea, his shafts in the whirlwind, yea, when all his hail and his mighty cstorm shall beat upon you, it shall have no power over you to drag you down to the gulf of misery and endless wo, because of the rock upon which ye are built, which is a sure foundation, a foundation whereon if men build they cannot fall."(Helaman 5:12)
My family and I have now been blessed with our own lighthouse to stand alongside Adrienne to brighten our storms with hope and direction in the darkness of adversity and trial. Anneliese has been made perfect in Christ and his atonement. We know her spirit lives on in the spirit world, and she eagerly awaits the day of resurrection just as Christ did. "For
Christ...might bring us to God, being put to death in the flesh, but quickened
by the Spirit: By which also he went and preached unto the spirits in prison; Which
sometime were disobedient, when once the longsuffering of God waited in
the days of Noah, while the ark was a preparing, wherein few, that is,
eight souls were saved by water. The like figure whereunto even
baptism doth also now save us (not the putting away of the filth of the
flesh, but the answer of a good conscience toward God,) by the
resurrection of Jesus Christ:
Who is gone into heaven, and is on the right hand of God; angels and authorities and powers being made subject unto him." (1 Peter 3:18-22). Children are perfected in Christ, and in his perfection, root for us to be steadfast and unmoved in the storms of life, that we might be reunited with them again someday. This knowledge doesn't remove all of the pain and sorrow that has come to us in burying our child that we want so badly to raise in this life, but this knowledge does make it bearable. There is a God in heaven, and he loves every one of his children perfectly. "For aGod so bloved the cworld, that he dgave his eonly begotten fSon, that whosoever gbelieveth in him should not perish, but have heverlasting ilife." (John 3:16) Christ Lives. He has paved the path for families to be together forever, and although I fall short every day, I find peace in his grace and glory for having closed the gap of my failures through his infinite atonement. We just need to take life one day at a time...and on the difficult days, one moment at a time. "Remember that without afaith you can do nothing..." Doctrine and Covenants 8:10
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