She has a PICC line in her left arm now, and they took out the other central line IV and 2 other IVs (yep, every little limb, but one foot, had an IV)
Took out respirator and back on high flow nasal cannula(they tried to ween her down on the pressure because she kept high SATing but when they did she had a lot more Apnea and Brady cardia episodes. . .so for now she is staying at a 4 at 21%-24%)
Anderson tube is also out (which provided suction and vented belly) and OG tube in (vents belly)
Just finished Antibiotics for pneumatosis on Monday and closely watching belly for increased NEC signs or symptoms
Still NPO (no food-just IV nutrition)
DRs hoping she can tolerate feedings again starting today so she can start gaining weight and growing more
She has two heart murmurs and will be doing an echo today to check the heart more fully
She also has another head ultrasound today as well.
They allowed me to hold her on February 14...really hold and snuggle her against my chest for over an hour. I finally felt that glimpse of being a mom to a newborn again. It made saying goodbye that much harder and I fell apart on Sunday as we left the hospital. I can honestly say I hate this. Yes, I know that hate is a strong word. But, I hate leaving Vivienne. I hate not knowing if she is truly doing ok. I hate leaving Jillian. I hate that this is stretching her at such a young age. I really hate that she hasn't met her sister yet. I can't wait for that day. There is SO much about this NICU experience that I hate, but we have also experienced SO much love that it has truly humbled and lifted us. I know I will never be able to thank everyone who is praying for our sweet little girl and our family. I can't even begin to thank everyone for the love they have shown us. We have been on the receiving end of so much service, generosity, and pure Christ-like love now for so very long that "Thank You" just seems SO inadequate. I truly wish you could see in my heart so I could show you my gratitude. It has been very humbling for me. Thank you! Thank you for the prayers on our behalf. Thank you for your love. Thank you for your friendships. Thank you for the cards, gift cards, gifts, meals, service, love and your strength. I hope one day I will be able to pay this forward. Thank you!